Committed to What Counts: Impacting Hemophilia Around the Globe
Biogen and Sobi commit up to a Billion international units (IUs) of therapy to be delivered in the developing world through our partnership with the World ...
Biogen
Developments in the management of hemophilia
Department of Medicine Grand Rounds presentation by Dr. Rebecca Kruse-Jarres, MD, MPH Associate professor of Medicine, Division of Hematology Director, ...
UWDeptMedicine
Health Economics and Outcome Assessments: Sustaining Hemophilia Care in a Tightening Economy
This WFH video podcast features a conversation about Health Technology Assessment (HTA) and Comparative Effectiveness Research (CER). Hosting the ...
WFHcommunications
Sanofi Genzyme and Sobi Partnership is Helping to Provide Access to Hemophilia Treatment Worldwide
The expected number of patients with hemophilia worldwide is 1125000, of whom 418000 have severe hemophilia. The gap in life expectancy for patients with ...
Sanofi
Medical Plenary: Hemophilia treatment in 2030
For select webcasts and other resources from the WFH 2016 World Congress go to: http://eLearning.wfh.org/WFHCongress In the Tuesday morning medical ...
WFHcommunications
Haemophilia Stories Teaser
Short teaser of the documentary Haemophilia Stories. Watch the full documentary and more on http://haemophiliastories.eu/
European Haemophilia Consortium
Life with Hemophilia: Meet Ryan
Meet Ryan and watch him discuss living with a bleeding disorder, and how he worked with his doctor to develop a personalized plan for managing his ...
Bleeding Disorders Community
World Haemophilia Day: Alex's Story.
World Haemophilia Day: Alex's Story. This is a story all about my medical condition. For reference; 1.42 the damage to my body from haemophilia 2.08: what is ...
Alex Dowsett
Webinar: Managing Arthritis with Hemophilia
This webinar is designed for adult men living with hemophilia and other bleeding disorders who experience joint damage and arthritis issues. In this ...
Hemophilia Federation of America
Novel Therapies in Hemophilia - Ashok B. Raj, M.D.
Ashok B. Raj, M.D. Interim Division Chief and Professor Division of Hematology, Oncology and Stem Cell Transplantation Department of Pediatrics Director, ...
Norton Healthcare
Terkel Anderson - Danish Haemophilia Society & EURORDIS
Terkel is President of EURORDIS and was a participant at the 5th European Conference on Rare Diseases (ECRD) Krakow, Poland 2010.
eurordis
WFH Webinar: Treatment Options for Hemophilia in the Developing World
Visit http://eLearning.wfh.org for many more WFH resources for the international bleeding disorders community. On December 16, 2016, the WFH in ...
WFHcommunications
Skyrocketing Drug Prices: A Bitter Pill to Swallow
While new discoveries in medicine have fueled the drug development industry, our ability to control costs and broaden access to drugs has decreased. What is ...
Johns Hopkins Medicine
Living With Hemophilia: Identification and Diagnosis
Doris V. Quon, MD, helps patient Eric Mamos share the story of his diagnosis of hemophilia at an early age and review the symptoms associated with this ...
Specialty Pharmacy Times
Current Issues in Inhibitor Surveillance
Panel discussion: Current Issues in Inhibitor Surveillance, does collaborative data gathering hold the key? With the exception of lack of access to care and ...
WFHcommunications
How managing diet goes too far - The connection between diabetes and eating disorders - Sara Mobäck
Sara Mobäck, top Swedish diabetes blogger, shares her personal experience of living with eating disorder in combination with diabetes.
Novo Nordisk
FROM BENCH TO BEDSIDE: HEMOPHILIA
Researchers are now testing gene therapies on hemophilia A and B. The therapies are designed to help blood clot better For contact information: ...
Ivanhoe Web
The Changing Landscape of Hemophilia Care: Economics and global access to product
At the 2014 World Congress held in May in Melbourne, Australia, the WFH brought together internationally renowned hematologists and patient advocates to ...
WFHcommunications
New Horizons Within Sight for Hemophilia
For select webcasts and other resources from the WFH 2018 World Congress go to: http://eLearning.wfh.org/WFHCongress. In the Tuesday morning VP Medical ...
WFHcommunications
Preventing Bleeds by Treatment: New era for hemophilia
For select webcasts and other resources from the WFH 2016 World Congress go to: http://eLearning.wfh.org/WFHCongress In the Vice President Medical's ...
WFHcommunications
Recent Advances in the Epidemiology and Genetics of Bipolar Disorder - Kathleen Merikangas
June 20, 2014 - The 2014-2015 Genomics in Medicine Lecture Series More: http://www.genome.gov/27556434.
National Human Genome Research Institute
Inhibitor Stories - Documentary
Inhibitor Stories captures the realities of life that people with haemophilia and inhibitors in Europe face day-to-day. Differences in access to treatment means very ...
European Haemophilia Consortium
Martin Hutchings | EHA 2018 | Key outcomes of the ECHELON-1 sub-analysis
23rd Congress of the European Hematology Association, 14-17 June 2018, Stockholm, Sweden Martin Hutchings Copenhagen University Hospital, ...
Lymphoma Hub
Astrid Pavlovsky | EHA 2018 | Key highlights from EHA on Hodgkin lymphoma
23rd Congress of the European Hematology Association, 14-17 June 2018, Stockholm, Sweden Astrid Pavlovsky Fundaleu CHP, Beunos Aires, AR Interview ...
Lymphoma Hub
Prophylaxis in haemophilia Part 1
ChildCancerCCLG
Webinar: Inhibitors—What You Need to Know
It's the most feared complication currently in hemophilia—the development of an inhibitor. In this webinar, we provide a basic overview of what it means to have ...
Hemophilia Federation of America
The Advantage of Prophylaxis for Adults with Joint Issues
It is a reality familiar to most adults with hemophilia of a certain age: repeated joint bleeds which subsequently causes joint deterioration, affecting everyday ...
NHF
Treating hATTR Amyloidosis: Historical Overview
A historical overview of the treatment of hereditary ATTR amyloidosis and considerations for using newer therapies such as patisiran or inotersen in appropriate ...
Neurology Live
CLL therapy - current status and issues
John Pagel, MD, PhD of the Swedish Cancer Institute, Seattle, WA provides an overview of an educational session on the current issues in therapeutic ...
VJHemOnc – Video Journal of Hematological Oncology
010 Robert F Sidonio
Foundation for Women & Girls With Blood Disorders
All About Hemophilia, The Royal Blood Disease
For centuries, hemophilia was a dangerous genetic disorder with no treatment. Children with hemophilia often didn't make it to adulthood, since a bump or fall ...
Weird History
Episode 7 - Minimizing the Burden of SLE
During this segment, Michelle Petri, MD, MPH, explains how systemic lupus erythematosus (SLE) burdens patients and can lead to disability under our country's ...
AJMCtv
Depression & Hemophilia
HemoAware President & CEO Jesse Clark shares his personal experience with Depression and Hemophilia. Good Posture Link: ...
HemoAware
COVID-HEME forum supports hematologists during COVID-19 pandemic
Philippe Armand and Roch Houot share information related to the recently launched COVID-HEME initiative including how hematologists can get involved.
Lymphoma Hub
Interview with Lise Murphy of Swedish Marfan Association
Lise Murphy of Swedish Marfan Association speaks to Paloma Tejada of EURORDIS at the conclusion of the 2009 EURORDIS Summer School for traning ...
eurordis
Prophylaxis, Teens and Adherence
Teenagers experience a dizzying array of both social and physical changes during this stage of life, a time when preventive hemophilia care is often put on the ...
NHF
Prophylaxis in haemophilia Part 2
ChildCancerCCLG
Approaching Risk Factors and Diagnosis of Hemophilia
Considering the risk factors and symptoms that might lead one to seek medical attention, expert panelists review the diagnostic workup of hemophilia and query ...
Specialty Pharmacy Times
Gene Therapy: Getting Up to Speed Webinar
Treatment options for hemophilia are advancing at a rapid pace. We are moving closer to the reality of gene therapy for hemophilia. Our community needs to ...
NHF
Role of Chromogenic Assays in Hemophilia Diagnosis and Monitoring of Treatment in Hemophilia B
For select webcasts and other resources from the WFH 2018 World Congress go to: http://eLearning.wfh.org/WFHCongress In the Tuesday afternoon session ...
WFHcommunications
New knowledge of blood stem cells can provide new treatments for blood cancer diseases
Hemophilia, anemia and blood cancer diseases such as leukemia are some diseases that could receive new, curative treatments if the secret of the blood stem ...
Wallenbergstiftelserna
WFH World Bleeding Disorders Registry kick-off webinar
WFHcommunications
