What is joint disease in people with haemophilia?
This short animation uses a simple bike analogy to explain what joint bleeds are, and how they can lead to joint disease in people with haemophilia.
Sobi - Swedish Orphan Biovitrum AB
Medical Plenary: Hemophilia treatment in 2030
In the Tuesday morning medical plenary, Erik Berntorp describes his vision of hemophilia treatment and medical advances in 2030.
WFHcommunications
Total Health | Hemophilia: Causes & Treatment | 30/06/2019
Total Health | Hemophilia: Causes & Treatment | 30/06/2019.
DD News
Sanofi Genzyme and Sobi Partnership is Helping to Provide Access to Hemophilia Treatment Worldwide
The expected number of patients with hemophilia worldwide is 1125000, of whom 418000 have severe hemophilia. The gap in life expectancy for patients with ...
Sanofi
World Haemophilia Day: Alex's Story.
World Haemophilia Day: Alex's Story. This is a story all about my medical condition. For reference; 1.42 the damage to my body from haemophilia 2.08: what is ...
Alex Dowsett
All About Hemophilia, The Royal Blood Disease
For centuries, hemophilia was a dangerous genetic disorder with no treatment. Children with hemophilia often didn't make it to adulthood, since a bump or fall ...
Weird History
Hemophilia Infusion
Self-Infusion For Hemophelia. Jerry Powell, M.D., of the Hemophilia Treatment Center, at U.C. Davis, says one of the most promising developments in ...
AHJBloodDisorders
EHC Annual Conference 2013 - EDQM recommendations: Haemophilia care in Europe
Prof Paul Giangrande, Chair of the European Haemophilia Consortium (EHC) Medical Advisory Group and Consultant Haematologist and Director Oxford ...
European Haemophilia Consortium
Haemophilia stories
European Haemophilia Consortium
You, your friends and haemophilia
A simple, fun video to help children with haemophilia understand how they can explain their condition to others.
Sobi - Swedish Orphan Biovitrum AB
Preventing Bleeds by Treatment: New era for hemophilia
In the Vice President Medical's plenary of the WFH 2016 World Congress, Marijke van den Berg, discusses how bleeds may be prevented by treatment in a new ...
WFHcommunications
Does COVID-19 pose a special risk for people with haemophilia?
Professor Cedric Hermans discusses the evidence to date in relation to COVID-19 poses a special risk for people with haemophilia.
Sobi - Swedish Orphan Biovitrum AB
Prophylaxis in haemophilia Part 1
ChildCancerCCLG
Episode 10 - Treating Mild and Severe Hemophilia
During this segment, Patrick F. Fogarty, MD, discusses the treatment goals for hemophilia, based on disease severity. Dr Fogarty defines prophylaxis, explains ...
AJMCtv
Ageing with Hemophilia: 50–60 years old, developed country
In the Thursday morning session entitled Ageing with Hemophilia: Issues and Challenges Through Different Life Stages, Randall Curtis presents the particular ...
WFHcommunications
Haemophilia hasn’t stopped me from getting more than 20 tattoos
Scott McLean, a 28-year-old from Buckingham in the UK, talks about his experience of getting more than 20 tattoos while having severe haemophilia A. Learn ...
Sobi - Swedish Orphan Biovitrum AB
Comprehensive Management of Hemophilia | Hemophilia Webinar
Dr Devakumar VK ADDITIONAL PROFESSOR OF PAEDIATRICS, SAT HOSPITAL The treatment of hemophilia may involve prophylaxis, management of ...
IAP Thiruvananthapuram
Get active and feel great with haemophilia
This fun animation shows Tim and John's journey to fitness – from setting realistic milestones, to watching for the early signs of joint bleeds. Find out more at ...
Sobi - Swedish Orphan Biovitrum AB
#hemophilia #idreamtoo #bepositive Hope for Hemophiliacs उम्मीदे (short movie)
इस वीडियो के माध्यम से एक हीमोफीलिक के जीवन की वो सच्चाई बताई गई है जो सभी के साथ होता है आप इस वीडियो के माध्यम से ...
I DREAM TOO Trust
The Changing Landscape of Hemophilia Care: Economics and global access to product
At the 2014 World Congress held in May in Melbourne, Australia, the WFH brought together internationally renowned hematologists and patient advocates to ...
WFHcommunications
Self-care during the COVID-19 pandemic for people with haemophilia
Professor Cedric Hermans talks about how people with haemophilia should look after themselves during the COVID-19 pandemic, including tips on avoiding ...
Sobi - Swedish Orphan Biovitrum AB
Hemophilia: A story of Hemophiliac patient Mohan Bhujel from Nepal
Hemophilia is a very serious situation in Nepal. Most of the hemophilic persons could not get a factor in time.
Bandu's Kids LAB
21/10/20 - Professor Christine Lee (PM 2/2) - Haemophilia Clinicians
Infected Blood Inquiry Hearing - 21/10/20.
Infected Blood Inquiry
Bad Blood. Victims of the UK’s contaminated blood scandal still seek justice
In the 1970s and 1980s, people with haemophilia in the UK received a new drug called Factor 8 imported from the US. Only years later did patients learn that ...
RT Documentary
Dr. Omar Shameddine talking about Prophylactic therapy in Hemophilia
Dr. Omar Shameddine talking about Prophylactic therapy in Hemophilia.
thepositivefactors
Hemophilia Webinar
Introduction to Hemophilia, Dr. Ahmed Tarawah, King Abdullah Medical City (USA) - Hemophilia Prophylaxis, Dr. Emna Gouider, University Tunis Elmanar ...
امراض الدم Saudi Blood
Prophylaxis, Teens and Adherence
Teenagers experience a dizzying array of both social and physical changes during this stage of life, a time when preventive hemophilia care is often put on the ...
National Hemophilia Foundation
08/12/2020 - Professor Ian Hann - Haemophilia Clinicians (3/4)
Infected Blood Inquiry
The Advantage of Prophylaxis for Adults with Joint Issues
It is a reality familiar to most adults with hemophilia of a certain age: repeated joint bleeds which subsequently causes joint deterioration, affecting everyday ...
National Hemophilia Foundation
Exercise for people with haemophilia during lockdown
In this video, Hans Meex talks about exercise for people with haemophilia during lockdown.
Sobi - Swedish Orphan Biovitrum AB
Hemofilia y su moderno abordaje terapéutico, Dra. Arlette Ruiz de Sáez [16.Noviembre.2017]
Hemofilia y su moderno abordaje terapéutico, Dra. Arlette Ruiz de Sáez [16.Noviembre.2017]
PAHO TV
Role of Chromogenic Assays in Hemophilia Diagnosis and Monitoring of Treatment in Hemophilia B
In the Tuesday afternoon session entitled Chromogenic Factor IX Assay in Laboratory Diagnosis and Monitoring of Treatment in Hemophilia B – To be Aware of ...
WFHcommunications
Hemophiliac heart transplant recipient needs kidney
Not specified.
KOIN 6
Women and Bleeding Disorders
Women and Bleeding Disorders: Untold Stories is a movie developed, edited and produced by the European Haemophilia Consortium (EHC) and directed by Mr ...
European Haemophilia Consortium
Prophylaxis on Hemophilia - Dr. S. Chandrakala
Importance of Prophylaxis treatment on Hemophilia to prevent bleeding episodes.
Hemophilia Federation India
EHC Annual Conference 2013 - Comprehensive Haemophilia Care
Prof Mike Makris, member of the European Haemophilia Consortium (EHC) Medical Advisory Group and Honorary Consultant Haematologist at the Sheffield ...
European Haemophilia Consortium
WFH Webinar: Treatment Options for Hemophilia in the Developing World
On December 16, 2016, the WFH in collaboration with the ISTH, recorded a live interactive webinar on the challenges and opportunities of treatment options for ...
WFHcommunications
Gene Therapy: Getting Up to Speed Webinar
Treatment options for hemophilia are advancing at a rapid pace. We are moving closer to the reality of gene therapy for hemophilia. Our community needs to ...
National Hemophilia Foundation
Webinar: Inhibitors—What You Need to Know
It's the most feared complication currently in hemophilia—the development of an inhibitor. In this webinar, we provide a basic overview of what it means to have ...
Hemophilia Federation of America
08/10/20 - Counsel Presentation (AM 2/2) - Haemophilia Clinicians
Infected Blood Inquiry Hearing - 08/10/20.
Infected Blood Inquiry
הכינוס החמישי לתקשורת המדע בישראל | Gal Yavetz
האקדמיה הלאומית הישראלית למדעים, הטכניון, ומרכז ספרא באוניברסיטת תל-אביב, בשיתוף מועדון העיתונות הבינלאומי בירושלים (JPC) הכינוס החמישי לתקשורת המדע בישראל | מדע, ...
The Israel Academy of Sciences and Humanities
Meet a haemophilia psychologist: tips for a successful consultation
Ana Torres Ortuño, a psychologist, works with people with haemophilia for the Murcia Regional Haemophilia Association in Spain. In this video she talks about ...
Sobi - Swedish Orphan Biovitrum AB
