FSHD 101 - What causes FSHD? With Matt Harms, MD
From the 2020 FSHD Connect Classroom conference. Dr. Matthew Harms of Columbia University Medical Center provides a lucid explanation of the genetic ...
FSHD Society
Resistant case of Facioscapulohumeral Muscular Dystrophy (FSHD) before Stem Cell Transplantation
stem cell india, stem cell therapy india, stem cell in india, stem cell therapy in india, india stem cell, india stem cell therapy, Stem Cell Transplantation, ...
Stem Cell India
Facioscapulohumeral Muscular Dystrophy
Diego Cadavid, MD, of Fulcrum Therapeutics explains facioscapulohumeral muscular dystrophy. Facioscapulohumeral muscular dystrophy is a rare disabling ...
CheckRare
The FSH Society brings people together to fight FSH muscular dystrophy
Katie Ruekert, an FSHD patient, and Jeffrey Statland, MD, a physician and researcher, explain how the FSH Society empowers individuals and researchers to ...
FSHD Society
Muscle Activation, Massage, and Rolf Technique in FSH muscular dystrophy
The FSH Society's Dallas support group meeting on January 19th featured outstanding presentations and hands-on demonstrations of muscle activation and the ...
FSHD Society
Update on the Phase 2 Facioscapulohumeral Muscular Dystrophy Clinical Trial
Diego Cadavid, MD, of Fulcrum Therapeutics provides an update on the Phase 2 Clinical Trial currently underway testing the safety and efficacy of losmapimod ...
CheckRare
Lab Lingo: How do you say Facioscapulohumeral Muscular Dystrophy
Learn about the work our researchers are doing: http://bit.ly/1rmeMhT Learn more about Dr. Harper: http://bit.ly/YdajEa Facioscapulohumeral muscular dystrophy ...
NationwideChildrens
FSHD Documentary 2019
2019 Sydney Chocolate Ball – 10 year documentary.
FSHDGlobalResearch
Why should FSH muscular dystrophy patients see a doctor every year?
Jeffrey Statland, MD, of the University of Kansas Medical Center, explains why it's important for facioscapulohumeral muscular dystrophy patients to have an ...
FSHD Society
A new genetic test for FSH muscular dystrophy
From the FSHD Society's Sequester Camp webinar series. Our speaker, Alka Chaubey, PhD, FACMG, is currently the Head of Cytogenomics at PerkinElmer ...
FSHD Society
Neuromuscular diseases: Facioscapulohumeral muscular dystrophy
Bruce Hermesch, of Seneca, Kan., has facioscapulohumeral muscular dystrophy (FSHD), a disorder characterized by muscle weakness and atrophy. He can ...
Kansas City Star
Fulcrum Therapeutics' approach to treating FSH muscular dystrophy
Presentation by Michelle Mellion, MD, medical director at Fulcrum Therapeutics. Recorded at the FSHD Society's Greater Philadelphia chapter meeting in ...
FSHD Society
Facial surgery methods for Facioscapulohumeral Muscular Dystrophy
FSH Society Baltimore patient meeting, February 16, 2013. Dr. Derek Boahene of the Johns Hopkins Hospital discussed surgical techniques he has developed ...
FSHD Society
Los Angeles FSHD Family Day - Emerging Treatment Strategies for FSH muscular dystrophy
From the FSH Society's conference on October 21, 2017, at Santa Monica College Bundy campus. Peter Jones, PhD, from the University of Nevada Reno ...
FSHD Society
What are the symptoms of FSHD?
Snippets from my documentary: https://www.youtube.com/watch?v=VSTgoxlMvUw My family sharing our symptoms and how they affect us.
Lexi Pappas
Finding my FSH muscular dystrophy family
After Katie was diagnosed with FSH muscular dystrophy, she found a new sense of purpose after she connected with others with facioscapulohumeral muscular ...
FSHD Society
Fulcrum Therapeutics' preparatory studies for clinical trials in FSH muscular dystrophy
Our Sequester Camp webinar with Michelle Mellion, MD, a senior medical director working on therapies for rare neuromuscular diseases at Fulcrum ...
FSHD Society
siRNA therapy for FSH muscular dystrophy
From the 2020 FSHD Connect Classroom conference. Dr. Anthony Saleh of miRecule describes the cause of FSH muscular dystrophy and research on siRNAs ...
FSHD Society
Scapular surgery for FSH muscular dystrophy
One of the classic symptoms of FSHD is “scapular winging.” The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an ...
FSHD Society
Advances in FSHD treatments
Recorded at the FSHD Society's 2019 Bay Area FSHD Family Day conference at Stanford Hospital. Speakers are John Day, MD, PhD of Stanford University, ...
FSHD Society
Lives Touched by Facioscapulhumeral Muscular Dystrophy (FSHD)
The FSH Society shares patients images and thoughts about living with this progressive muscle-wasting disease. A treatment is in sight. Join us and make a ...
FSHD Society
Phase II Study Testing Losmapimod for Facioscapulohumeral Muscular Dystrophy
Diego Cadavid, MD of Fulcrum Therapeutics explains the ongoing phase II clinical trial for facioscapulohumeral muscular dystrophy. Facioscapulohumeral ...
CheckRare
FSH Muscular Dystrophy - Without you, we can't win this fight
Produced by the FSH Society. Directed and edited by Neil Kimball, Charles Leisenring and Caisy Lun. We thank the patients and researchers who agreed to ...
FSHD Society
Physical Therapy and Exercise for FSHD, with Richard Gee, PT
Physical therapist Richard Gee of Stanford Hospital's Neuromuscular Division speaks at the FSH Society's 2017 Bay Area FSHD Family Conference.
FSHD Society
FSH Society - Introduction to yoga for people with FSHD
Recorded at the Los Angeles FSHD Connect patient network meeting on April 18, 2015. Instructor Alexa Schang, PT DPT NCS, RYT-200. Dr. Schang's is a ...
FSHD Society
COVID-19 and FSH muscular dystrophy
This FSHD Society webinar features Ghinwa Dumyati, MD, Professor of Medicine and Director of Communicable Disease Surveillance and Prevention at the ...
FSHD Society
Parents experience with FSH Muscular Dystrophy
Speech by Rachael Albert, mother of Mitchell a young boy aged 5 who is affected by FSH Muscular Dystrophy, at the FSHD Global Chocolate Ball 2012.
FSHDGlobalResearch
FSH Muscular Dystrophy - Peter Howes Family Experience
Peter Howes touching and emotional story of his family's experience with FSH Muscular Dystrophy, at the FSHD Global Chocolate Ball 2013. He provides us ...
FSHDGlobalResearch
FSH Society webinar - Swallow and speech issues in FSH muscular dystrophy
This presentation is by Kiera Berggren, SLC, a research speech-language pathologist (SLP) in the Department of Neurology and the FSHD Clinical Trial ...
FSHD Society
Research progress into facioscapulohumeral muscular dystrophy (FSH)
Workshop presented by Professor Silvere van der Maarel, Leiden University Medical Centre, the Netherlands.
Muscular Dystrophy UK
Interview with Amy Bekier on living with FSH Muscular Dystrophy
Amy Bekier explains what FSH Muscular Dystrophy is, and what it's like to live with this degenerative muscle-wasting disease. She is an advocate for greater ...
FSHD Society
FSH Muscular Dystrophy patients speak up
Cyndi Seagroves and Ray Jordan, both affected by facioscapulohumeral muscular dystrophy, or FSHD, ask for your support of research to conquer this disease.
FSHD Society
The #CureFSHD muscular dystrophy campaign
Please share this over your social media and website. You could change someone's life. Video edited by Charles Leisenring. Photography by Romana Vysatova ...
FSHD Society
Jacob Young supports FSH muscular dystrophy research
The dashing star of the Bold and the Beautiful urges you to learn about and support research on facioscapulohumeral muscular dystrophy, or FSHD.
FSHD Society
American Ninja Fights FSH Muscular Dystrophy
American Ninja star Michael Dudikoff is helping to combat facioscapulohumeral muscular dystrophy, or FSHD.
FSHD Society
Genetics of FSH muscular dystrophy - Julie Cohen Part 1
From the FSH Society Baltimore Patient support meeting on May 11, 2013. Genetics counselor Julie Cohen of the Kennedy Krieger Institute explains the two ...
FSHD Society
Melissa Biggs speaks up for FSH muscular dystrophy
Actress, model and humanitarian Melissa Biggs urges you to learn about and support research on facioscapulohumeral muscular dystrophy, or FSHD.
FSHD Society
Q&A about FSH muscular dystrophy with Kathryn Wagner, MD PhD
Kathryn Wagner, MD PhD, has seen patients with FSH muscular dystrophy for more than 20 years. As director of the Center for Genetic Muscle Disorders at the ...
FSHD Society
Molecular therapy for FSH muscular dystrophy
Scott Harper, PhD, of Ohio State Medical School and Nationwide Children's Research Institute in Columbus, Ohio, explains gene and molecular therapy and ...
FSHD Society
My experience with scapular fusion/fixation surgery (FSHD)
Check out my documentary here: https://www.youtube.com/watch?v=VSTgoxlMvUw&t=324s For more info, you can email me: alexipappas19@gmail.com or find ...
Lexi Pappas
CBD and medical marijuana for FSH muscular dystrophy
From the FSHD Society's September 2019 webinar. With the spread of legalized medical marijuana and the passage of the 2018 Farm Bill that made CBD legal ...
FSHD Society
"Amazing Race" winners for FSH Muscular Dystrophy
Chip and Kim McAllister urge you to learn about and support research on facioscapulohumeral muscular dystrophy, or FSHD.
FSHD Society
